And just like that 16 days has passed since my last post, so let’s jump into what’s been going on!
One, we visited to Colorado for 6 days.
Two, we got some more info on the blood work.
Three, we have a timeframe for our move and it’s SO short!
We spent 6 days in the Centennial State applying to jobs, looking around neighborhoods, visiting family, and spending the day in the mountains. It was a nice break from the craziness that has surrounded us. I took these 6 days to disconnect from social media and forget about the outside world.
Since we were in Colorado and had time to spare, we decided to spend the day in Breckenridge. We spent the morning driving through the mountains and walking through town—drinking coffee and cocoa, roaming through stores, and eating at Downstair’s at Eric’s. It was a great way to close out our trip!
Blood Work/Health Update
Oh, what an update I received! I decided to sit on the information before I shared, so that I could absorb the information and figure out a game plan. Boy, am I glad I waited!
I was told on a Thursday that my ANA and Lupus blood test came back positive. I was very surprised—not with the ANA result, but with the Lupus panel. I was informed that the doctor and his head nurse would discuss my results and call me back the following day.
On Friday, I got a phone call from the head nurse who only talked about my ANA results and my MTHFR medication. Her and the doctor’s response to the ANA results was to see my rheumatologist ASAP and have them test me for 4 different diseases. She, also, said that because I was developing a very large, itchy, and painful rash I was to stop taking the MTHFR medication (Folbic). My immediate concern was becoming pregnant because that medication is vital to a pregnancy (it provides me with folic acid, B6, and B12). Her response was to come in immediately, if I were to become pregnant and they’d find/give me something to take.
Before hanging up, I informed her that we’d be moving soon and I wanted to pick up all of my paperwork ASAP.
After hanging up I realized that we didn’t discuss anything about the Lupus panel. While it surprised me, I figured I’d ask about it when I got the paperwork.
That Wednesday I got the paper work and spoke to the head nurse. Here is what I learned:
- The reason she had not discussed a Lupus panel was because the Lupus test was never submitted during this round of testing. The nurse that I spoke to first had MISSPOKE. I was (and am) so mad!
- My MTHFR mutation classification is actually 2 mutations. Heterozygous for both the C677T and A1298C genes (a blog post is coming soon).
While I am taking steps to remedy the misspeaking situation, I am jumping into research to understand what the MTHFR mutation means since I have more information.
I also have to decide on when to change regions within my insurance. If I transfer my insurance now, I am no longer able to see my current doctor and get the appropriate medications, if I were to become pregnant. If I wait to transfer my insurance until we are ready to leave Georgia, I won’t have any appointments or be able to get referrals to specialist for several weeks. Thus, leaving me without a doctor who can prescribe medications (if we become pregnant).
Let me know what your thoughts are in the comment below.
Our Move and Blog Postings
As of right now (Friday 9/29/17), we have 13 days left in Georgia! That means we have to pack what we need (for the next 3 months) in our cars, the Army has to put our stuff in boxes and put it in storage, and we need to tie up loose ends. All in 12 days or less. If you take away weekends, we have 10 days, but really we only have 9 left. On day 13, we have to hand in our keys, gas up, and start driving west.
9 DAYS! THAT’S IT!
I’m not sure what that will mean for posting, but I will be writing.
Here is what to expect:
- I’m turning my Long Trip Packing post into a Moving with Limited Supplies post.
- I’ll be writing down what happens fertility-wise for updates.
- I’m still keeping track of food for the September Shelf Shopping Series. Say that 5 times fast!
- And I brainstorming new content—day in the life, move updates, etc.